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News & Events

The Kids researchers who helped identify rare disorder now poised to help the hunt for treatment

Two The Kids Research Institute Australia researchers recognised for their role in building a global database for CDKL5 deficiency disorder are now helping to set the scene for clinical trials of much-needed potential treatments.

News & Events

New friend to improve social attention of kids with autism

An attention-training game developed by researchers at The Kids Research Institute Australia is helping to improve social skill development in school-aged kids with autism.

News & Events

Study sheds new light on the ‘autism epidemic’ mystery

Researchers have shown that the so called 'autism epidemic' is due to an increase in the diagnosis of children with less severe behavioural symptoms.

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Researcher elected fellow of prestigious international autism research society

The Kids Research Institute Australia autism researcher Professor Andrew Whitehouse has been inducted as a Fellow to the International Society for Autism Research (INSAR),  making him just the fourth Australian to be bestowed the honour.

About

Rett syndrome is a rare but serious neurological disorder that affects about 1 in 9,000 girls. Even more rarely, boys may be affected.

Behavior and mutation type

We also wanted to find out whether any particular behaviours were associated with any specific mutation types.

A validation study of a modified Bouchard activity record

We compared parent/carer-reported physical activities with the number of steps counted by an accelerometer in girls and women with Rett syndrome.

Physical and mental health of mothers caring for a child with Rett syndrome

We wanted to find out whether mothers with a child with Rett syndrome who were more physically and mentally healthy had particular characteristics.

Family satisfaction following spinal fusion in Rett syndrome: a cohort study

This study evaluated sixty-one families' satisfaction following spinal fusion in girls with Rett syndrome.

ActiveRett

Staying physically active is an important part of a healthy lifestyle. ActiveRett is a dedicated resource for helping families support their child with Rett syndrome to keep active.