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The Kids researchers who helped identify rare disorder now poised to help the hunt for treatmentTwo The Kids Research Institute Australia researchers recognised for their role in building a global database for CDKL5 deficiency disorder are now helping to set the scene for clinical trials of much-needed potential treatments.

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New friend to improve social attention of kids with autismAn attention-training game developed by researchers at The Kids Research Institute Australia is helping to improve social skill development in school-aged kids with autism.

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Study sheds new light on the ‘autism epidemic’ mysteryResearchers have shown that the so called 'autism epidemic' is due to an increase in the diagnosis of children with less severe behavioural symptoms.

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Researcher elected fellow of prestigious international autism research societyThe Kids Research Institute Australia autism researcher Professor Andrew Whitehouse has been inducted as a Fellow to the International Society for Autism Research (INSAR), making him just the fourth Australian to be bestowed the honour.
Rett syndrome is a rare but serious neurological disorder that affects about 1 in 9,000 girls. Even more rarely, boys may be affected.
We also wanted to find out whether any particular behaviours were associated with any specific mutation types.
We compared parent/carer-reported physical activities with the number of steps counted by an accelerometer in girls and women with Rett syndrome.
We wanted to find out whether mothers with a child with Rett syndrome who were more physically and mentally healthy had particular characteristics.
This study evaluated sixty-one families' satisfaction following spinal fusion in girls with Rett syndrome.

Staying physically active is an important part of a healthy lifestyle. ActiveRett is a dedicated resource for helping families support their child with Rett syndrome to keep active.