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Parental factors influencing child digital technology use in the early years.

Psychometric properties of QI-Disability in CDKL5 Deficiency Disorder: Establishing readiness for clinical trials

CDKL5 Deficiency Disorder (CDD) is a rare genetic disorder with symptoms of epilepsy, developmental impairments, and other comorbidities. Currently, there are no outcome measures for CDD with comprehensive evidence of validation. This study aimed to evaluate the psychometric properties of the Quality of Life Inventory-Disability (QI-Disability) in CDD. Quality of Life Inventory-Disability was administered to 152 parent caregivers registered with the International CDKL5 Disorder Database (ICDD).

Dr Nofar Ben Itzhak

Senior Research Fellow

Structural determinants of long term functional outcomes in young children with cystic fibrosis

Structural determinants of long term functional outcomes in young children with cystic fibrosis BACKGROUND: Accelerated lung function decline in

POSTDOCTORAL RESEARCH FELLOW – AUTISM RESEARCH

Opportunity to join the Autism Research Team as a Senior Research Officer

Postdoctoral Research Fellow - Autism Research

An exciting postdoctoral fellowship opportunity for researchers with interest in identification and early intervention for children with autism.

How Well Does the EQ-5D-Y-5L Describe Children With Intellectual Disability?: “There's a Lot More to My Child Than That She Can't Wash or Dress Herself.”

The EQ-5D-5L is a generic health utility instrument for measuring health-related quality of life (HRQoL), with self-report and proxy report versions for children (EQ-5D-Y-5L). Children with intellectual disability (ID) are a heterogeneous population whose impairments and comorbidities place them at risk of poor HRQoL. This study aimed to describe the content validity and suitability for children with ID of a proxy report version of the EQ-5D-Y-5L as seen by their caregivers.

"The problem with running"-Comparing the propulsion strategy of children with Developmental Coordination Disorder and typically developing children

Children with Developmental Coordination Disorder (DCD) often have difficulties running.

Unique CliniKids a marriage of research and practice

A unique new model developed by the The Kids autism research team marries cutting-edge research with clinical practice to offer families innovative, evidence-based interventions designed to help kids reach their full potential.

Cystic fibrosis research a Eureka Prize finalist

A world-leading cystic fibrosis research program, based at The Kids Research Institute Australia, is a finalist in the 2015 Australian Museum Eureka Prizes.