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Design custom data collection forms using WinForms and ASP.Net, administration of data collection, and general database interrogation and management.

Seeking an experienced fundraiser or marketing professional

We are seeking a highly motivated, ambitious and skilled individual to be part of a young, energetic and interdisciplinary research team.

We are looking for someone who can bring both technical (platform administration) skills and a vision (solution implementation/direction) to the table.

A research leadership & research management role across established research projects in FASD Prevention, Diagnosis, and Therapy/support

This study explored relationships between speech and language abilities in girls with Rett syndrome and how they may be affected by the type of genetic mutation

We reviewed literature and RettNet to explore firsthand perspectives of gastrointestinal issues in Rett Syndrome, then developed recommendations with experts.

We interviewed 21 families with a daughter with Rett Syndrome about aspects of their daughters' lives that were satisfying or challenging to them.

This study measured changes in bone density over time using dual energy x-ray absorptiometry (DEXA). Lean tissue or muscle mass (LTM) was also measured.

Using a large sample size, we investigated the relationships between epilepsy and genotype, and the impact of medications used on seizure management.