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Family satisfaction following spinal fusion in Rett syndrome: a cohort study
This study evaluated sixty-one families' satisfaction following spinal fusion in girls with Rett syndrome.
Behavior and mutation type
We also wanted to find out whether any particular behaviours were associated with any specific mutation types.
A validation study of a modified Bouchard activity record
We compared parent/carer-reported physical activities with the number of steps counted by an accelerometer in girls and women with Rett syndrome.
Physical and mental health of mothers caring for a child with Rett syndrome
We wanted to find out whether mothers with a child with Rett syndrome who were more physically and mentally healthy had particular characteristics.