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Research

Application of Population-Based Linked Data to the Study of Intellectual Disability and Autism

Data linkage is the bringing together of specific datasets from different sources using demographic information on individuals within a population.

Research

Cyclical variation in the incidence of childhood type 1 diabetes in Western Australia (1985-2010)

The objective was to examine the incidence of childhood type 1 diabetes in Western Australia from 1985-2010.

Research

ART, birth defects and subfertility-what should prospective patients be told?

Clinicians who counsel prospective ART patients about birth defect risk should provide information about the overall risk of having a child with a birth defect

Research

Women's knowledge and attitudes regarding alcohol consumption in pregnancy: a national survey

Alcohol exposure in pregnancy is a common and modifiable risk factor for poor pregnancy and child outcomes.

News & Events

New screening tool for FASD and ADHD in children

The Kids is trialling a new tool for earlier and easier screening of FASD and ADHD in children, using cutting-edge eye-tracking technology developed by the Kids Brain Health Network in Canada.

Research

Efficacy of cannabinoids in neurodevelopmental and neuropsychiatric disorders among children and adolescents: a systematic review

A better understanding of the endocannabinoid system and a relaxation in regulatory control of cannabis globally has increased interest in the medicinal use of cannabinoid-based products (CBP). We provide a systematic review of the rationale and current clinical trial evidence for CBP in the treatment of neuropsychiatric and neurodevelopmental disorders in children and adolescents.

Research

Rett syndrome in Australia: a review of the epidemiology

To examine the prevalence, cumulative incidence, and survival in an Australian cohort with Rett syndrome (RTT).

Research

Challenges in Accurately Assessing Prenatal Alcohol Exposure in a Study of Fetal Alcohol Spectrum Disorder in a Youth Detention Center

Accurately assessing prenatal alcohol consumption is exceptionally challenging when assessed retrospectively as part of a FASD assessment for a young person sentenced to detention

Research

Reducing harms related to alcohol use in pregnancy – policy and practice recommendations

This issues brief outlines opportunities for change to support reduction of harms related to alcohol use in pregnancy

Research

Prevalence of microcephaly in an Australian population-based birth defects register, 1980-2015

We identified a high proportion of cases without known cause, highlighting the need for clinicians to carefully investigate all possibilities, including emerging infections.