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Rett syndrome and Related Disorders

In this The Kids Research Institute Australia subsite, our Rett syndrome research team manages a national and international database of Rett syndrome.

Research

ORIGINS of Neurodevelopmental Risk and Resilience

This project aims to better understand the early genetic and environmental factors that the developing brain during a child’s first five years of life.

Research

Meningococcal Disease

Meningococcal disease is caused by the bacteria Neisseria meningitidis, or 'meningococcus'. It is an uncommon but very serious disease that can result in death if not recognised and treated quickly.

Research

Missing Piece Study protocol: Prospective surveillance to determine the epidemiology of group A streptococcal pharyngitis and impetigo in remote Western Australia

Group A β-haemolytic Streptococcus (GAS), a Gram-positive bacterium, causes skin, mucosal and systemic infections. Repeated GAS infections can lead to autoimmune diseases acute rheumatic fever (ARF) and rheumatic heart disease (RHD). Aboriginal and Torres Strait Islander peoples in Australia have the highest rates of ARF and RHD in the world.

Research

Rheumatic Heart Disease Worldwide: JACC Scientific Expert Panel

The authors present a variety of pressing clinical research questions on optimal RHD prevention and advanced care

Research

The Investigation of Health-Related Topics on TikTok: A Descriptive Study Protocol

The social media application TikTok allows users to view and upload short-form videos. Recent evidence suggests it has significant potential for both industry and health promoters to influence public health behaviours. This protocol describes a standardised, replicable process for investigations that can be tailored to various areas of research interest, allowing comparison of content and features across public health topics.

Research

Co-designing a trauma-informed program for parents whose infant has had a Neonatal Intensive Care Unit (NICU) admission

Having a newborn child admitted into a NICU can be highly traumatic for parents. The compounding effects of the NICU clinical environment, having a seriously ill child, in addition to the inability to care or adequately bond with your child can be extremely distressing.

News & Events

Come along to our first ever Science & Sip for teachers

Want to find out more about what an excursion to The Kids is all about? Join us for our first ever Science & Sip!

News & Events

Pre-term kids get green light to exercise

Parents of children born prematurely have expressed concerns about their child’s lung health when they exercise, with symptoms such as breathlessness.