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Research

Using demethylating agents to sensitise ependymoma to chemotherapy

Raelene Nick Endersby Gottardo BSc (Hons) PhD MBChB FRACP PhD Brainchild Fellow; Co-Head, Brain Tumour Research Head of Paediatric and Adolescent

Research

Using syringe infusion pumps Springfusors for the administration of intravenous antibiotics for children with CF at PCH (SIPS-CF)

André Schultz MBChB, PhD, FRACP Head, BREATH Team Head, BREATH Team Prof André Schultz is the Head, BREATH Team at The Kids Research Institute

Research

WA Register for Autism Spectrum Disorders

The aim of the WA Register for Autism Spectrum Disorders is to monitor diagnostic trends of Autism Spectrum Disorders. These disorders develop in

Research

Wellcome Active Ingredients: Parenting Review

The aim of the current project is to explore view of youth with lived experiences and their caregiver on the role of parent/caregivers and family in the prevention and treatment of anxiety and depression in adolescents in low- and middle- income countries.

Noongar language session by KalyaKoorl (Dylan Collard)

Embark on a linguistic journey with KalyaKoorl’s tailor-made Noongar Language Programs.

Assessment and management of nutrition and growth in Rett syndrome

We developed recommendations to assess and manage issues relating to poor growth and weight gain in Rett syndrome, including consideration of gastrostomy.

Experience of gastrostomy using a quality care framework: The example of Rett syndrome

We investigated our data from family questionnaires to see how feeding difficulties related to age, the type of MECP2 mutation, and the use of gastrostomy.

Level of purposeful hand function as a marker of clinical severity in Rett syndrome

We developed a measure of hand function, and then investigated relationships between hand function, type of MECP2 mutation, age and severity of symptoms.

Parental experiences of scoliosis management

We investigated what parents thought about the ways to manage scoliosis and what they thought they needed to help them better manage their daughter's scoliosis.