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Our vision is to increase awareness and improve outcomes for children with movement disorders and other neurodevelopmental conditions impacting on motor function.

We aim to ensure that high quality outcome measures are available to evaluate treatments and services for children with disability rigorously. We aim to translate our research into resources to support families, carers and clinicians.

Research

The Sibling Project focuses on the wellbeing, relationships and needs of children, adolescents and emerging adults who have a sibling with a developmental disability.

Developmental and epileptic encephalopathy (DEE) conditions are rare, and most have a genetic cause.

One of the many reasons for setting up the International CDKL5 Disorder Database was to learn more about this condition.

Research

There is an urgent need to develop high-quality falls prevention services for older adults with intellectual disability

Research

For mothers with intellectual disability, modifiable risk factors for adverse outcomes need addressing

Research

People with intellectual disability fall at a younger age compared with the broader community

Research

The IDEA system is a valuable resource to address the needs of people living with intellectual disability

Research

Synthesized findings demonstrate that people with intellectual disability, who live in community or residential settings, may fall more frequently, and at a younger age