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Through InterRett we collect information on individuals with Rett syndrome on a global level. If you are a participant you can complete your questionnaire here.

News & Events

Thanks for everyone who have contributed to and participated in this wonderful event to raise much needed funds to support Rett Syndrome research!

News & Events

Taylor is a remarkable young woman with Rett Syndrome who is leading an active country life with the support of her family and the local community.

News & Events

Research at Telethon Institute has shown a correlation between brain tumours in young children and their parents' exposure to diesel exhaust fumes before birth.

News & Events

Researchers at Telethon Institute have found genetic differences in the rare and aggressive NUT-midline carcinoma, presenting new treatment opportunities.

News & Events

Research has discovered the first concrete evidence linking Vitamin D deficiency with poorer lung function and changes in lung growth.

We are looking for children to take part in an important study that will assess a new treatment designed to prevent ongoing ear infections in kids having grommet surgery.

The Kids Research Institute Australia is looking for healthy babies (born from 35 weeks of pregnancy onwards) to take part in an important study evaluating a new medication that may help prevent Respiratory Syncytial Virus (RSV) disease.

Whooping Cough Study in Young Adults could lead to an effective “stand alone” vaccine for Australians

Recruitment in New Zealand ran from May 2019 through to June 2021, with a total of 115 participants enrolled. Participants were recruited from two