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Through InterRett we collect information on individuals with Rett syndrome on a global level. If you are a participant you can complete your questionnaire here.
News & Events
High Tea for Rett Syndome at Caversham HouseThanks for everyone who have contributed to and participated in this wonderful event to raise much needed funds to support Rett Syndrome research!
News & Events
The Silent AngelTaylor is a remarkable young woman with Rett Syndrome who is leading an active country life with the support of her family and the local community.
Research
Free testosterone levels in umbilical cord blood predict infant head circumference in girlsFetal androgens influence fetal growth as well as postnatal neurocognitive ability.
Research
Targeting the mucosal immune system in a mouse model to prevent pregnancy complications following maternal bacterial infectionThis work is the first step to develop safe treatments for pregnant mums to protect against preterm delivery and low birth weight caused by maternal infections.
Research
Atypical presentations and specific genotypes are associated with a delay in diagnosis in females with Rett syndromeThere is often delay between onset of Rett syndrome symptoms and its diagnosis, possibly related to symptom presentation or socio-demographic factors.
Research
The role of family and maternal factors in childhood obesityThe aim of this study was to investigate the relationship between a child's weight and a broad range of family and maternal factors.
Research
The impact of having a sibling with an intellectual disability:parental perspectives in two disordersThis study describes the impact of having a sibling with Down syndrome or Rett syndrome using a questionnaire completed by parents.
Research
Epidemiology of childhood diabetes in Western AustraliaThe objectives of this study are to study the epidemiology of childhood diabetes in Western Australia from 1985 onwards.
Research
The Sibling ProjectThe Sibling Project focuses on the wellbeing, relationships and needs of children, adolescents and emerging adults who have a sibling with a developmental disability.